tag:blogger.com,1999:blog-30774035.post7446035664356648237..comments2024-02-10T10:12:06.927+00:00Comments on Fuzzydragons: This is coolJennifer Rosehttp://www.blogger.com/profile/06528908250338974537noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-30774035.post-50493831377581608362008-10-28T17:32:00.000+00:002008-10-28T17:32:00.000+00:00Thank you for sharing something that must have bee...Thank you for sharing something that must have been very difficult for you. You are very brave and strong. My thoughts are with you- I have lived with MS in the family and I know how horrible it can be. Keep strong HugsXXMargaret Garroodhttps://www.blogger.com/profile/16722329886261874203noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-19608284008146623622008-10-25T10:51:00.000+01:002008-10-25T10:51:00.000+01:00A brilliant post Jennifer, and a very brave one......A brilliant post Jennifer, and a very brave one...methinks you deal with it very well, the best way you know how....thanks for sharing it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-30774035.post-4382205343053797782008-10-24T20:29:00.000+01:002008-10-24T20:29:00.000+01:00Jennifer - that was a wonderful post, both for the...Jennifer - that was a wonderful post, both for the realism of living with MS and your courage for posting it.Chichibouliehttps://www.blogger.com/profile/09870165886859493342noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-72677997013804066092008-10-24T14:14:00.000+01:002008-10-24T14:14:00.000+01:00Jennifer, I am glad you posted this. I always come...Jennifer, I am glad you posted this. I always come to your blog knowing that your posts will be bright and upbeat. I see you as a very strong and determined person and I think this post only confirms that - advocating for MS is a very positive thing to do and I admire you for that. I hope they can advance this, or any treatment, quickly. Gentle *hugs* from across the pond :)Annhttps://www.blogger.com/profile/08559534274200050929noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-91784675015566534842008-10-24T11:02:00.000+01:002008-10-24T11:02:00.000+01:00thanks Tara :)I get emails to or people telling me...thanks Tara :)<BR/><BR/><BR/>I get emails to or people telling me about a new treatment that they heard. I know people are just trying to help, and want to feel like they are doing something. And it is nice to know people care, but it is sometimes hard to tell someone nicely that the drugs already been proven not to work, that a new treatment is crap. I'm scared of that too, no idea what stage I am at either. I've had MS for at least 4 years but would that be too far along? Or someone who has only had symptoms for a year that are worse be too far along. Its so hard to put a time limit on something like this, especially with so many people hoping they can try this. <BR/><BR/>*hugs* emma I didn't cry mean to make anyone cry. Don't apologise for anything like that! You do need to say things like that to get them off of your chest. I hate having memory problems. Stupid meds :/ Its really frustrating when I know what I am trying to say but my memory wont let me. Sometimes it takes someone else with the same things to understandJennifer Rosehttps://www.blogger.com/profile/06528908250338974537noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-63118021441698547112008-10-24T09:32:00.000+01:002008-10-24T09:32:00.000+01:00It takes a lot to make me cry but sat here sobbing...It takes a lot to make me cry but sat here sobbing. Everything you have written is how I feel and its actually scares me.<BR/>Because I got dressed yesterday everyone thought I was fine when in fact I wanted to knock back a huge amount of pills and sleep through the pain.<BR/>Sick of explaining to everyone why I can't remember things, why I'm knackered, why I don't want to sit and listen to them whinge about being tired because they went to bed late. Christ I'm using your blog to sound off. Sorry hun. Thank you for sharing such a personal shot of your life. Lots of hugs (gentle ones!) Em.x~Emma~https://www.blogger.com/profile/11580343103550018032noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-24490074045306610612008-10-24T08:42:00.000+01:002008-10-24T08:42:00.000+01:00I just found out about this drug today. Usually I ...I just found out about this drug today. Usually I get an email about some bogus thing from people who think they are helping, but this time I got an email about this new drug that may end up really working.<BR/><BR/>What I'm kind of scared about is that by the time I can get access to it, I'll be too far along in the disease for it to work. I noticed that they said it works on early stages of RRMS. I don't really know what stage I'm in anymore.twenty pound tabbyhttps://www.blogger.com/profile/05954536089892872581noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-40974430738294411402008-10-23T22:37:00.000+01:002008-10-23T22:37:00.000+01:00I saw that yesterday and thought of you...Don't ge...I saw that yesterday and thought of you...Don't get me wrong, I know you have MS, I think I bin here long enough to see the odd bits you hav written here and there. Teens right, if you be a crabby one, we will still tell you...I told my bruv off about being crabby with my Dad even though I knew he only had weeks to go (no excuse) but, you are a star, you ain't a moaner and now and then its good to speak out....your sister sounds cool, big hugs XXAnonymoushttps://www.blogger.com/profile/03252876587579985190noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-37392985705590625472008-10-23T21:59:00.000+01:002008-10-23T21:59:00.000+01:00what a fantastic post!you are not broken, you are ...what a fantastic post!<BR/>you are not broken, <BR/>you are amazing.<BR/>you are such a fighter! <BR/>you are an amazing artist, <BR/>a talented writer,<BR/> <BR/>MS is part of you, <BR/>fecking awful part but a part none the less. <BR/> <BR/>my mate has MS and we were arguing as we went round a supermarket....someone said very loudly "you shouldn't argue with that poor lassie she is disabled...."<BR/>I said you are seeing her disability, <BR/>I am seeing her....and today she is a crabit bugger! <BR/> <BR/>thanks for link to article. <BR/> <BR/>xoxoxMacpurphttps://www.blogger.com/profile/08633245876101975583noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-24970304083714140892008-10-23T19:38:00.000+01:002008-10-23T19:38:00.000+01:00Jennifer, Thank you for sharing. There are so ma...Jennifer, Thank you for sharing. There are so many misconceptions and just plain lack of understanding when it comes to suffering from chronic diseases. I think it is very useful to 'speak up' about what your experiences are. The more others are exposed to real people, working through whatever their struggles are hopefully the more empathetic we all become.<BR/><BR/>Best wishes as you transverse your own journey.tlchanghttps://www.blogger.com/profile/10259427561396960607noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-31510187420682311062008-10-23T19:25:00.000+01:002008-10-23T19:25:00.000+01:00Thank you Rose for the lovely comment :DWe both ha...Thank you Rose for the lovely comment :D<BR/><BR/>We both had the bruises :p But I will admit I can throw a pretty mean punch :p self defense 101 lolJennifer Rosehttps://www.blogger.com/profile/06528908250338974537noreply@blogger.comtag:blogger.com,1999:blog-30774035.post-80697321317904624972008-10-23T16:23:00.000+01:002008-10-23T16:23:00.000+01:00HiI think yuor a fighter and hope you know that i ...Hi<BR/>I think yuor a fighter and hope you know that i never once thought you were broken. i worry about you cause your my sister but not just cause of the ms, part is cause your so far away and i dont get to see you. i dont understand alot about ms and have been reading the stuff you gave me and trying to learn. i know your a fighter i sported the bruises to prove it. I think dad worries more cause hes so sick so i hope you dont let that bug you to much. I wish the pain wasnt so bad for you cause i know you dont like taking pain pills and i get you dont wanna be a zombie. I want you to know that just cause im in Canada doesnt mean i wouldnt do anything i could for you. I hope i didnt go to far and understand if you dont post this, but i want you to know i miss you and love you and thats been a constant not a new development. I miss talking to you.<BR/>luv ya <BR/>sisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-30774035.post-56727781754453300892008-10-23T15:19:00.000+01:002008-10-23T15:19:00.000+01:00Jennifer, thanks for posting this. I think it is v...Jennifer, thanks for posting this. I think it is very hard for those who don't have any contact with MS to understand...posts like this really do help us to at least get a better idea. The one thing that speaks to me from your post is that you are a brave individual who never takes anything without a fight...no matter what you face, that's a great attitude.Rose Weltyhttps://www.blogger.com/profile/00313411909909580181noreply@blogger.com