Fuzzydragons

So I've tried to speak about how to cope with knowing your partner has MS. I don't want to sound like whiner or undermine what Jen goes through, but I need to air this, and maybe save someone else from becoming as embittered, cynical and hardened as I am. To be honest there are a damned lot of times I struggle to cope, I won't lie, its taken a horrendous mental toll. Watching someone slowly lose their mobility isn't easy, especially when you see the statistics... 50% of RRMS sufferers go to SPMS within 10 years, and 90% within 25 years....not really great odds and persistently the elephant in the room...constant uncertainty is what wears you down, not knowing. At least with a roadmap you know what to expect, but with MS its always ready to throw you an unpleasant curve ball when you least expect it. Jen copes admirably...me on the other hand, I feel worn down, burnt out, bitter, angry at everything and nothing at the same time...an unfocused rage with no one targ...

Carefree Canadian Days So I've been thinking about writing this for a long, long time, just haven't found the words, still not sure I have tbh. The following is my and only my view of what its like to be the partner / carer of someone with M.S. I say partner / carer as the lines rapidly become blurred, and at times it can feel as though your more carer than husband /partner / wife / girlfriend / boyfriend / fiance / fiancee etc. Lets go back 10 years, we had just gotten back to the U.K. after almost a year in Canada (we came back for a myriad of reasons - too many to go into - had we not..the road taken, likely would have been a lot lot different) A few months in, I noticed Jen stumbling, tripping over her feet, falling over for no reason, then she started having pins and needles and loss of sensation in her hands and feet. Thankfully the GP recognised it as stocking and glove neuropathy, and referred Jen to neurology, at this point I was working as a Bookseller in Bo...